Joy for terminally ill Kirkby girl Corah

Lisa Slaney and her daughter Corah.
Lisa Slaney and her daughter Corah.

A terminally teenager who desperately needed £40k home changes to cope with her condition have been raised to the top of the list by Ashfield District Council.

Corah Slaney, 16, was diagnosed with Mitochondrial Disease and the conditions means she can no longer care for herself. She was told it would take two years for the works to be completed by the authority.

Her family had resorted to raising £40,000 for the much-need wet room and downstairs bedroom at their home but now have been told they are next in line for the work.

Mum Lisa Slaney said she was pleased with the decision as it meant Corah could lead a more comfortable life when all work is done.

But thanks to the widespread media coverage, and support from family and friend son social media sites, the council decided to do a swift u-turn on their original decision

She said: “It’s fantastic news. It is going to take a few months to get organised and then work will start which will take around 14 weeks, so overall we are looking at six months, which is still along time really.”

Corah said she it was lovely and can’t wait to get her own room again.

“We are pleased, but Corah had the same needs a week before so I don’t see why that has changed. There are so many others hundreds of people in the same situation who aren’t high profile who are waiting. This is still a big issue and I hope we have highlighted that something needs to be done to improve. No-one should have to wait that long, if they are a child or an adult. If those needs are there they should be met.”

The family are still hoping to raise £20,000 for additional costs - but if there is any extra cash leftover it will be donated to the Lily Foundation - a charity dedicated to supporting children or families affected by Mitochondrial Disease.

A spokeswoman for Ashfield District Council said: “The council received a referral from Nottinghamshire County Council accompanied with a ‘priority letter’. This effectively instructs Ashfield District Council to progress the recommended works urgently.

“Any works will be subject to the Council’s planning process and following planning approval, a suitable contractor will be appointed to commence the works.

“The Council will ensure that this priority work progresses as swiftly as possible.”