Couple are set to take to the skies for charity

The Kirk family in Selston prepare to take to the sky are Darren and Rachel Kirk aim todo a skydive for charity pictured with their sons Kieran and Dane Kirk
The Kirk family in Selston prepare to take to the sky are Darren and Rachel Kirk aim todo a skydive for charity pictured with their sons Kieran and Dane Kirk

A MOTHER-OF-TWO, whose husband and two sons suffer from the same genetic disease, is doing a skydive to raise awareness and money for research.

Rachel Kirk’s husband, Darren (43), and the couple’s two sons, Kieran (10) and six-year-old Dane, suffer from Neurofibromatosis type 1 - a genetically inherited disorder which causes the nerve tissue to grow tumours.

The 43-year-old will be joined by her husband, sister Diane, and 22 others on the day for the Neuro Foundation charity - which supports people who suffer from Neurfibromatosis.

They will jump from between 13-14,000 feet at Sibston Airfield, near Peterborough, on 7th April.

Said Rachel: “I am really looking forward to it because it is my first time, but it is something I have always wanted to do.

“If we get a lovely clear day it could be quite pleasant.

“It means a lot to do this because I want more people to be aware of it.

“It can cause learning difficulties and if they cannot pinpoint the condition there could be kids with the condition at school who are unaware they have it.”

Typical symptoms of the disease include birth marks on the skin, which look a little like coffee stains - and while some tumours are harmless, others may cause serious damage by compressing nerves which can often affect the brain or a person’s eyesight.

Said Rachel: “My sons are a little smaller than they should be, but thankfully they have not needed any surgery but they have regular check-ups to make sure their eyes are OK.”

Anyone who would like donate to the Neuro Foundation in honour of the Kirks’ skydive, click here.